A Multidisciplinary Care Pathway Improves Quality of Life and Reduces Pain in Patients with Fibrous Dysplasia/mccune-Albright Syndrome: a Multicenter Prospective Observational Study

Maartje E. Meier,Marlous Hagelstein-Rotman,Annenienke C. van de Ven,Ingrid C. M. Van der Geest,Olav Donker,Sarina E. C. Pichardo,Petra C. E. Hissink Muller,Stijn W. van der Meeren,Desirée M. J. Dorleijn,Elizabeth M. Winter,Michiel A. J. van de Sande,Natasha M. Appelman-Dijkstra

Orphanet Journal of Rare Diseases（2022）

Cited 2|Views7

Key words

Fibrous dysplasia,McCune-Albright syndrome,Rare bone disease,Care pathway,Multidisciplinary care,Tertiary referral hospital,Quality of life,Pain,Patient reported outcome measure

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