Navigating Meaningful Engagement: Lessons from Partnering with Youth and Families in Brain-Based Disability Research

Linda Nguyen,Kinga Pozniak,Sonya Strohm, Jessica Havens, Claire Dawe-McCord,Donna Thomson,Connie Putterman,Dana Arafeh,Barb Galuppi,Alicia Via-Dufresne Ley,Shelley Doucet,Khush Amaria,Adrienne H. Kovacs,Ariane Marelli,Ronen Rozenblum,Jan Willem Gorter

Research Involvement and Engagement（2024）

Cited 2|Views21

Key words

Patient engagement,Patient-oriented research,Patient-centered care,Authentic engagement,Adolescent and young adult,Families or caregivers,e-health,Healthcare transition,Brain-based disabilities

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