Multidisciplinary, Multicenter Consensus for the Care of Patients Affected with Sturge–Weber Syndrome

May El Hachem,Andrea Diociaiuti,Angela Galeotti,Francesca Grussu,Elena Gusson,Alessandro Ferretti,Carlo Efisio Marras,Davide Vecchio,Simona Cappelletti,Mariasavina Severino,Carlo Gandolfo, Simone Reali,Rosa Longo,Carmen D’Amore,Lodovica Gariazzo, Federica Marraffa,Marta Luisa Ciofi Degli Atti,Maria Margherita Mancardi

Orphanet Journal of Rare Diseases（2025）

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关键词

Sturge–Weber syndrome,Capillary malformation,Pulsed dye laser,Glaucoma,Epilepsy,Intellectual disability,Neuroimaging,Anaesthesia,Medical and surgical treatment,Psychosocial care

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